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What will happen to my child after I die?

Planning for the future can feel overwhelming, especially when you have a young person or an adult child who has significant care needs. You'll want to make sure your child is supported and secure when you are no longer able to help. 

Why plan ahead?

Many parents worry about:

  • Who will support their child financially
  • How money will be managed safely
  • Whether their child could lose benefits
  • What happens if family circumstances change

Making a plan for their future will ensure that your child will continue to be looked after without interruption if you die. By planning this in advance you will be able to arrange care that meets your expectations.

We have set out below some key steps you can take to help protect your love one and provide for them once you are gone.

A care plan is a good way to ensure that if you fall ill and are unable to care for your child, or if you die, your child will be properly looked after. Even if you have made arrangements for emergencies, it is essential to make an emergency care plan for your child's care, especially if they have complex needs.

The care plan should include your child's details, medical requirements and contact names and numbers in case of an emergency. Your local authority will help you develop an emergency care plan when they carry out an assessment for your child under the Children Act.

Read more information about emergency care planning 

A care plan is a good way to ensure that if you fall ill and are unable to care for your child, or if you die, your child will be properly looked after. Even if you have made arrangements for emergencies, it is essential to make an emergency care plan for your child's care, especially if they have complex needs.

The care plan should include your child's details, medical requirements and contact names and numbers in case of an emergency. Your local authority will help you develop an emergency care plan when they carry out an assessment for your child under the Children Act.

Read more information about emergency care planning 

Writing a will can help you address all the fears you may have about what will happen to your children when you die. You can write a will through a solicitor, using a will writing pack or using online will writing services. Whichever option you choose you should research the requirements and decide whether you are confident about writing the will for yourself or if you would like to have professional help.

The Role of a Will

A will ensures your wishes are followed when you die rather. 

Find out what would happen to your estate if you die without a will

Wills must be reviewed after major life events like marriage, divorce, or significant financial changes to make sure they still reflect your wishes.

How to get a will

In general, your options for writing a will include: 

  • writing it yourself  

  • using a regulated professional to be your will writer 

  • using an unregulated professional will writer 

To find a solicitor to set up a will in the UK, use The Law Society's "Find a Solicitor" website, selecting "Wills and probate" as your legal issue. Look for firms with the Wills and Inheritance Quality Scheme (WIQS) accreditation for high standards. You can also search via the National Will Register

What to consider when buying will writing services

Writing a will can help you address all the fears you may have about what will happen to your children when you die. You can write a will through a solicitor, using a will writing pack or using online will writing services. Whichever option you choose you should research the requirements and decide whether you are confident about writing the will for yourself or if you would like to have professional help.

The Role of a Will

A will ensures your wishes are followed when you die rather. 

Find out what would happen to your estate if you die without a will

Wills must be reviewed after major life events like marriage, divorce, or significant financial changes to make sure they still reflect your wishes.

How to get a will

In general, your options for writing a will include: 

  • writing it yourself  

  • using a regulated professional to be your will writer 

  • using an unregulated professional will writer 

To find a solicitor to set up a will in the UK, use The Law Society's "Find a Solicitor" website, selecting "Wills and probate" as your legal issue. Look for firms with the Wills and Inheritance Quality Scheme (WIQS) accreditation for high standards. You can also search via the National Will Register

What to consider when buying will writing services

A trust is a legal way of managing money, property or investments for someone. It protects those assets so they can be used when your child needs them.

Instead of giving money directly to your child, the money is placed into a trust and looked after for them.

How a will and trust work together

You can:

  • Set up the trust during your lifetime
  • Include the trust in your will

When you die, money or property from your estate (everything you own) can be paid into the trust.

You can also add money to the trust while you are alive if you wish.

Types of trust often used

Discretionary trust

  • Trustees decide how and when money is used
  • Flexible and can adapt as your child’s needs change
  • Can support your child throughout their life

Disabled person’s trust

  • Similar to a discretionary trust
  • Has different tax rules
  • Must meet certain eligibility criteria (for example, receiving certain benefits)

A legal or financial adviser can help you decide which is best.

Key roles explained simply

  • Your child (the beneficiary): the person the trust is for
  • You (the settlor): the person who sets up the trust and puts money into it ]
  • Trustee: the person or organisation who manages the money and decides how it is used

Trustees must always act in your child’s best interests.

A Trust is a legal document so it’s important to seek the right legal advice to ensure you are selecting the right Trust for your own individual and family circumstances.

To find a solicitor for setting up a trust in the UK, you can use the Law Society's "Find a Solicitor" database to search for specialists in "Wills, trusts and probate".

Charities like Mencap and Scope offer advice, and in some cases, services to help set up trusts (such as a discretionary trust or disabled person’s interest trust) to protect assets or compensation for a vulnerable person.

A trust is a legal way of managing money, property or investments for someone. It protects those assets so they can be used when your child needs them.

Instead of giving money directly to your child, the money is placed into a trust and looked after for them.

How a will and trust work together

You can:

  • Set up the trust during your lifetime
  • Include the trust in your will

When you die, money or property from your estate (everything you own) can be paid into the trust.

You can also add money to the trust while you are alive if you wish.

Types of trust often used

Discretionary trust

  • Trustees decide how and when money is used
  • Flexible and can adapt as your child’s needs change
  • Can support your child throughout their life

Disabled person’s trust

  • Similar to a discretionary trust
  • Has different tax rules
  • Must meet certain eligibility criteria (for example, receiving certain benefits)

A legal or financial adviser can help you decide which is best.

Key roles explained simply

  • Your child (the beneficiary): the person the trust is for
  • You (the settlor): the person who sets up the trust and puts money into it ]
  • Trustee: the person or organisation who manages the money and decides how it is used

Trustees must always act in your child’s best interests.

A Trust is a legal document so it’s important to seek the right legal advice to ensure you are selecting the right Trust for your own individual and family circumstances.

To find a solicitor for setting up a trust in the UK, you can use the Law Society's "Find a Solicitor" database to search for specialists in "Wills, trusts and probate".

Charities like Mencap and Scope offer advice, and in some cases, services to help set up trusts (such as a discretionary trust or disabled person’s interest trust) to protect assets or compensation for a vulnerable person.

Why would you want a trust?

  • Even modest inheritances (e.g., £6,000) can threaten entitlement to means-tested benefits so if your disabled young person relies on benefits, an inheritance could mean they are no longer entitled.
  • If your loved one lacks capacity, the Court of Protection may appoint a deputy—potentially undermining your wishes.
  • There's increased risk of financial abuse when lump sums are received by young people with SEND without safeguards.

Why would you want a trust?

  • Even modest inheritances (e.g., £6,000) can threaten entitlement to means-tested benefits so if your disabled young person relies on benefits, an inheritance could mean they are no longer entitled.
  • If your loved one lacks capacity, the Court of Protection may appoint a deputy—potentially undermining your wishes.
  • There's increased risk of financial abuse when lump sums are received by young people with SEND without safeguards.

The trustees will not know your young person or adult child like you do. It will help them and those who may need to care for them if they know exactly what has to be done each day. 

You could keep a log of the food and drinks that your young person or adult child likes and dislikes, what time they wake up and go to bed, what time they need their medication and so on.

Doing this will make life easier for your young person or adult child when you are gone.

This is a document where you explain:

  • What your child enjoys
  • Their needs and preferences
  • The people important to them
  • Your hopes for their future

It is not legally binding, but it helps guide the trustee’s decisions.

You can update this letter at any time.

The trustees will not know your young person or adult child like you do. It will help them and those who may need to care for them if they know exactly what has to be done each day. 

You could keep a log of the food and drinks that your young person or adult child likes and dislikes, what time they wake up and go to bed, what time they need their medication and so on.

Doing this will make life easier for your young person or adult child when you are gone.

This is a document where you explain:

  • What your child enjoys
  • Their needs and preferences
  • The people important to them
  • Your hopes for their future

It is not legally binding, but it helps guide the trustee’s decisions.

You can update this letter at any time.

Money in the trust can be used for things that improve your child’s quality of life, such as:

  • Daily living costs
  • Activities, hobbies or holidays
  • Equipment or support services
  • Housing costs or improvements

Each request is considered based on your child’s needs and best interests.

If you have chosen to write a Letter of Wishes, it will be used to help the trustees decide what is in your young person's or adult child's best interests.

Money in the trust can be used for things that improve your child’s quality of life, such as:

  • Daily living costs
  • Activities, hobbies or holidays
  • Equipment or support services
  • Housing costs or improvements

Each request is considered based on your child’s needs and best interests.

If you have chosen to write a Letter of Wishes, it will be used to help the trustees decide what is in your young person's or adult child's best interests.

You can choose:

  • A family member or friend
  • A professional (such as a trust company)

Things to think about:

  • Being a trustee is a long-term responsibility
  • The role includes legal and financial decision-making
  • Circumstances can change over time

Some families choose a professional trustee because they:

  • Offer experience and continuity
  • Are not affected by personal changes
  • Can manage complex situations

You can choose:

  • A family member or friend
  • A professional (such as a trust company)

Things to think about:

  • Being a trustee is a long-term responsibility
  • The role includes legal and financial decision-making
  • Circumstances can change over time

Some families choose a professional trustee because they:

  • Offer experience and continuity
  • Are not affected by personal changes
  • Can manage complex situations
  1. Get advice
    Speak to a solicitor or financial adviser about the best type of trust for your family
  2. Set up the trust
    Complete the legal paperwork
  3. Write your Letter of Wishes
    Share your knowledge and hopes for your child
  4. Update your will
    Make sure it includes the trust
  5. Keep things under review
    Update your plans if your child’s needs or circumstances change
  1. Get advice
    Speak to a solicitor or financial adviser about the best type of trust for your family
  2. Set up the trust
    Complete the legal paperwork
  3. Write your Letter of Wishes
    Share your knowledge and hopes for your child
  4. Update your will
    Make sure it includes the trust
  5. Keep things under review
    Update your plans if your child’s needs or circumstances change