Who to Speak to First
Start by speaking with a professional who knows your child, most commonly:
- Your GP
- A health visitor (for children under 5)
- Your child’s school SENCO (Special Educational Needs Co‑ordinator)
Preparing for the Appointment
Helpful steps include:
- Write a list of signs or behaviours you have noticed (include examples)
- Ask teachers, family members, or carers for their observations in writing to put with yours
- Bring notes, a pen, and (if helpful) a friend or partner for support
- Focus the appointment specifically on autism concerns and arrange another appointment for any unrelated issues
- Write down any questions for your GP and asking what the local referral pathway looks like in your area.
Getting a Referral for an Autism Assessment
Tell the professional that you are concerned about autism and would like to discuss a referral for an autism assessment. If the professional believes your child may be autistic, they will make a formal referral to CAMHS. A referral is usually sent as a form, and you can ask for a copy if one is not automatically shared with you.
You can also self-refer to CAMHS or your child’s school can make the referral instead of a GP.
The assessment process may take time.
Your “Right to Choose”
In England, families have a legal Right to Choose who provides their NHS autism assessment.
This means:
- Your GP should offer you a choice of provider
- The provider must offer NHS services in England
- Some families choose providers with shorter waiting times or more convenient locations
Right to Choose eligibility criteria apply.
ADHD UK have a very helpful list of providers who have signed up to be part of The Right to Choose. Many of these providers assess for both ADHD and autism.
What Happens During an Autism Assessment?
Autism assessments involve a team of specialists and may include:
- Detailed discussions about your child’s development and day‑to‑day life
- Observations of how your child communicates and interacts
- Information from people who know your child well (such as teachers)
- Structured tools and assessments
At the end of the process, you will receive a written diagnostic report, explaining whether your child is autistic.
