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Parent’s Guide to Claiming Personal Independence Payment (PIP) for Your Young Person

When a young person reaches 16 years old, they will no longer receive Disability Living Allowance (DLA). Instead, they will need to apply for Personal Independence Payment (PIP).

Before their 16th birthday, they should receive a letter asking whether they want to claim PIP and whether they will manage the claim themselves or need a parent/carer to do this on their behalf.

PIP is a benefit from the government to support people who have a long-term disability, health condition, or special educational needs that affect their daily life or ability to get around.

Important points:

  • PIP is not means-tested — it does not depend on income, savings, or employment.
  • Young people can receive PIP even if they live at home.

PIP is a benefit from the government to support people who have a long-term disability, health condition, or special educational needs that affect their daily life or ability to get around.

Important points:

  • PIP is not means-tested — it does not depend on income, savings, or employment.
  • Young people can receive PIP even if they live at home.

A young person may qualify if:

  • They are 16 or over
  • They’ve had difficulties for at least 3 months
  • Their challenges are expected to continue for at least 9 more months

PIP looks at how their condition affects everyday activities such as:

  • Communicating or understanding
  • Social interaction and mixing with others
  • Planning or following journeys
  • Washing, dressing, and eating
  • Staying safe

A young person may qualify if:

  • They are 16 or over
  • They’ve had difficulties for at least 3 months
  • Their challenges are expected to continue for at least 9 more months

PIP looks at how their condition affects everyday activities such as:

  • Communicating or understanding
  • Social interaction and mixing with others
  • Planning or following journeys
  • Washing, dressing, and eating
  • Staying safe

If your young person doesn’t receive DLA or didn’t get the invitation letter, you will need to contact the Department for Work and Pensions (DWP) by phone to start the claim.

You’ll need to provide the young person’s:

  • Full name
  • Address and postcode
  • Date of birth
  • National Insurance number
  • GP or health professional details
  • Bank account details
  • Contact details for someone supporting them (optional)

If they find phone calls difficult, you or another trusted adult can call on their behalf — but the young person must be present for the first call.

Take photos or copies before sending.

If your young person doesn’t receive DLA or didn’t get the invitation letter, you will need to contact the Department for Work and Pensions (DWP) by phone to start the claim.

You’ll need to provide the young person’s:

  • Full name
  • Address and postcode
  • Date of birth
  • National Insurance number
  • GP or health professional details
  • Bank account details
  • Contact details for someone supporting them (optional)

If they find phone calls difficult, you or another trusted adult can call on their behalf — but the young person must be present for the first call.

Take photos or copies before sending.

Most applicants will have an assessment with a trained health professional, either:

  • In person
  • By phone
  • By video

This is not a medical test; it is a conversation about your young person’s day-to-day needs.

Your young person can:

  • Have you present
  • Ask for adjustments (breaks, quiet room, slower pace)
  • Request simple explanations of questions
  • Tell the assessor if they feel overwhelmed or anxious

Assessors might ask:

  • “What help do you need each day?”
  • “Do you go out alone?”
  • “How do you manage cooking, washing, planning, communicating?”

It’s completely okay for your young person to say:

  • “I don’t know”
  • “I need help to explain”
  • “That’s difficult for me”

The ‘How Your Disability Affects You’ Form (PIP2)

After the initial phone call, the PIP2 form will arrive by post.
This form asks detailed questions about:

Daily Living

  • Preparing food, eating, washing, dressing
  • Social interaction
  • Communication
  • Making decisions and staying safe

Mobility

  • Walking
  • Planning and following journeys
  • Anxiety or difficulties when going out

Most applicants will have an assessment with a trained health professional, either:

  • In person
  • By phone
  • By video

This is not a medical test; it is a conversation about your young person’s day-to-day needs.

Your young person can:

  • Have you present
  • Ask for adjustments (breaks, quiet room, slower pace)
  • Request simple explanations of questions
  • Tell the assessor if they feel overwhelmed or anxious

Assessors might ask:

  • “What help do you need each day?”
  • “Do you go out alone?”
  • “How do you manage cooking, washing, planning, communicating?”

It’s completely okay for your young person to say:

  • “I don’t know”
  • “I need help to explain”
  • “That’s difficult for me”

The ‘How Your Disability Affects You’ Form (PIP2)

After the initial phone call, the PIP2 form will arrive by post.
This form asks detailed questions about:

Daily Living

  • Preparing food, eating, washing, dressing
  • Social interaction
  • Communication
  • Making decisions and staying safe

Mobility

  • Walking
  • Planning and following journeys
  • Anxiety or difficulties when going out

A decision letter will explain:

  • Whether your young person has been awarded PIP
  • How much they will receive
  • How long the award lasts

PIP has two components:

  1. Daily Living
  2. Mobility

Each can be awarded at standard or enhanced rate.

A decision letter will explain:

  • Whether your young person has been awarded PIP
  • How much they will receive
  • How long the award lasts

PIP has two components:

  1. Daily Living
  2. Mobility

Each can be awarded at standard or enhanced rate.

If your young person cannot manage their own claim, you can apply to become their appointee.
This means you will take responsibility for:

  • Their PIP claim
  • Paperwork
  • Assessments
  • Managing benefit payments

Contact Jobcentre Plus to start this process — it is usually straightforward and will not delay their claim.

If your young person cannot manage their own claim, you can apply to become their appointee.
This means you will take responsibility for:

  • Their PIP claim
  • Paperwork
  • Assessments
  • Managing benefit payments

Contact Jobcentre Plus to start this process — it is usually straightforward and will not delay their claim.

  • Keep a daily diary of difficulties and unsafe situations
  • Take your time completing the form
  • Review answers with your young person
  • Be honest and give real examples

Remember: PIP exists to provide support — no one should feel guilty for applying.

  • Keep a daily diary of difficulties and unsafe situations
  • Take your time completing the form
  • Review answers with your young person
  • Be honest and give real examples

Remember: PIP exists to provide support — no one should feel guilty for applying.