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Finding Support for Carers

Caring for a child or young person with special educational needs or disabilities (SEND) can be rewarding, but it can also feel overwhelming at times. Having the right support around you makes a big difference. This section is designed to help carers connect with others, share experiences, and access organisations that offer practical advice and emotional support.

Here, you’ll find information on:

  • Creating your own support network – tips on finding like-minded carers, joining local groups, and building connections that provide encouragement and understanding.
  • Organisations that can help – details of local and national services offering guidance, peer support, and resources tailored to carers of children and young people with SEND.

Whether you’re looking for someone to talk to, advice on navigating services, or opportunities to share experiences, this section will point you in the right direction.

Building Support Networks for Carers

Caring for someone with additional needs or a disability can be challenging so seeking help is essential. Support can come from family, friends, neighbours, or formal groups.

Asking for help

It can feel award to ask for help but we all need help sometimes and there is no shame in this. Try sharing practical tasks with family, friends or neighbours to ease daily pressures. This could be things like shopping, transport, errands, or occasional caregiving so you can have a bath or go grab a coffee on your own.  

Where to find support

Social Media

Social media platforms like Facebook make it easy to find local and virtual carer support groups. For example, the Hampshire Parent Carer Network have a Facebook group for each area of Hampshire; Test Valley, East Hants, Havant, Hart and Rushmoor, Fareham and Gosport, Basingstoke and the New Forest

Online Resources

Websites such as Carers UK and condition-specific forums offer tailored advice and links to local support groups run by national charities such as the National Autistic Society and Mencap

Family, Friends, and Neighbours

Build connections with the people around you with open communication for emotional support and practical help.

Faith-Based Groups

Religious institutions often offer support so if you attend a local place of worship, let people know you need help and find out what they can offer.

Online Communities

You can attend support groups without having to leave your home. For example, The National Autistic Society, ADHD UK, Carers UK, Forward Carers, PANDAS Foundation, OCD UK, and Motor Neurone Disease Association all have online groups that you can attend.

Developing friendships with local people

Nextdoor connects people with neighbours for local advice and recommendations. Try posting here to find carers or support in your area. Your local library will run events for children and parents and are a great way to meet new people in an inclusive environment. Meetups hosts group events for different groups of people. Have a look at what is happening local to you. 

Building Support Networks for Carers

Caring for someone with additional needs or a disability can be challenging so seeking help is essential. Support can come from family, friends, neighbours, or formal groups.

Asking for help

It can feel award to ask for help but we all need help sometimes and there is no shame in this. Try sharing practical tasks with family, friends or neighbours to ease daily pressures. This could be things like shopping, transport, errands, or occasional caregiving so you can have a bath or go grab a coffee on your own.  

Where to find support

Social Media

Social media platforms like Facebook make it easy to find local and virtual carer support groups. For example, the Hampshire Parent Carer Network have a Facebook group for each area of Hampshire; Test Valley, East Hants, Havant, Hart and Rushmoor, Fareham and Gosport, Basingstoke and the New Forest

Online Resources

Websites such as Carers UK and condition-specific forums offer tailored advice and links to local support groups run by national charities such as the National Autistic Society and Mencap

Family, Friends, and Neighbours

Build connections with the people around you with open communication for emotional support and practical help.

Faith-Based Groups

Religious institutions often offer support so if you attend a local place of worship, let people know you need help and find out what they can offer.

Online Communities

You can attend support groups without having to leave your home. For example, The National Autistic Society, ADHD UK, Carers UK, Forward Carers, PANDAS Foundation, OCD UK, and Motor Neurone Disease Association all have online groups that you can attend.

Developing friendships with local people

Nextdoor connects people with neighbours for local advice and recommendations. Try posting here to find carers or support in your area. Your local library will run events for children and parents and are a great way to meet new people in an inclusive environment. Meetups hosts group events for different groups of people. Have a look at what is happening local to you. 

Contact: the charity for families with disabled children

Contact provide support and services to families with a child with a disability, including a Listening Ear Service.

 

Their Listening Ear service offers hour-long 1-1 telephone appointments with a family support adviser.

Where their helpline provides information and advice, Listening Ear is for parent carers looking for emotional support and reassurance – though they can provide practical help too.

Wellchild - the national charity for sick children

The charity Wellchild also have a Listening Ear Service as well as a providing advice and information and giving grants. Listening Ear is a dedicated service offering 1-1 telephone appointments for parent carers seeking emotional support. Whether you're struggling mentally and looking for coping strategies, or simply need someone who understands the unique challenges you face, Listening Ear is here for you. 
This service provides hour-long 1-1 telephone appointments with a family support adviser. Listening Ear focuses on emotional support and reassurance, with practical help available too. Their parent advisers are not only professionals with extensive experience but also parents of children and young people with disabilities.

The Challenging Behaviour Foundation - support for parents of children and young people with a learning disability and behaviour which challenges

The Challenging Behaviour Foundation have a Listening Ear Service where parents can get support if their child has behaviour which is challenging.

During these 1-hour sessions, you are free to chat to one of our family carers about whatever you need to. This is a safe, non-judgmental space for you to offload any stresses or worries you may have with one of two family carers who have offered their time to support others. These sessions are informal chats and are not counselling, information or advice services.

Family Lives - Support for parents

Family Lives has a helpline called Parentline, provide e-mail support and provides free to access and here to support you with parenting and family challenges. Get one-to-one support through their free helpline on 0808 800 2222, live chat or message them via WhatsApp on 07441 444125 to connect with experienced professional family support workers and highly-trained volunteers.

Contact: the charity for families with disabled children

Contact provide support and services to families with a child with a disability, including a Listening Ear Service.

 

Their Listening Ear service offers hour-long 1-1 telephone appointments with a family support adviser.

Where their helpline provides information and advice, Listening Ear is for parent carers looking for emotional support and reassurance – though they can provide practical help too.

Wellchild - the national charity for sick children

The charity Wellchild also have a Listening Ear Service as well as a providing advice and information and giving grants. Listening Ear is a dedicated service offering 1-1 telephone appointments for parent carers seeking emotional support. Whether you're struggling mentally and looking for coping strategies, or simply need someone who understands the unique challenges you face, Listening Ear is here for you. 
This service provides hour-long 1-1 telephone appointments with a family support adviser. Listening Ear focuses on emotional support and reassurance, with practical help available too. Their parent advisers are not only professionals with extensive experience but also parents of children and young people with disabilities.

The Challenging Behaviour Foundation - support for parents of children and young people with a learning disability and behaviour which challenges

The Challenging Behaviour Foundation have a Listening Ear Service where parents can get support if their child has behaviour which is challenging.

During these 1-hour sessions, you are free to chat to one of our family carers about whatever you need to. This is a safe, non-judgmental space for you to offload any stresses or worries you may have with one of two family carers who have offered their time to support others. These sessions are informal chats and are not counselling, information or advice services.

Family Lives - Support for parents

Family Lives has a helpline called Parentline, provide e-mail support and provides free to access and here to support you with parenting and family challenges. Get one-to-one support through their free helpline on 0808 800 2222, live chat or message them via WhatsApp on 07441 444125 to connect with experienced professional family support workers and highly-trained volunteers.

Finding the right support for a holiday as a carer can make all the difference in your well-being. Numerous organisations are dedicated to helping carers have a holiday for carers both accessible and affordable. Some are as a family and some are just for carers to enjoy.

Carers Trust local carer centres will be able to give you information and there are a select number of grants for holidays available.

The Family Fund can provide grants towards the cost of holidays for families on a low income who are caring for a child with a severe disability.

The Home Farm Trust (Hft) produces an annual Holiday Information Guide for people with learning disabilities, carers, organisations and support groups.

The Family Holiday Association provides breaks at holiday sites, or grants to help with the cost of a holiday, to low-income families in need of a holiday away from home. You need to be referred by your social worker, GP or health visitor, or by a charity or other welfare agent.

Honeypot offers countryside respite breaks for young carers.

The Kiloran Trust has a house in west London for carers to stay in with the person they care for.

Over The Wall is a charity that supports children with serious illnesses, and their siblings and parents. It runs fun activity camps in Wiltshire, Dorset, Staffordshire and Scotland for siblings and weekend camps for the whole family unit.

Revitalise provides respite holidays for disabled people and carers.

After Umbrage is a charity providing free, short breaks for anyone who has been caring for someone with a life limiting condition. It also offers breaks to carers within their first 12 months of bereavement.

Little Miracles provide caravan holidays for carers. The six berth caravan (two bedrooms and a pull-out sofa) is accessible with ramps, wide entranceways, an accessible toilet and shower (wet room). The caravan is fully furnished so you can relax in the knowledge that all of your family's needs will be catered for.

Carefree has hundreds of hotels nationwide which donate rooms out of their excess capacity. Through Carefree you can access a 1-2 night hotel stay with a companion, at a time and place that works for you. You just pay a £33 admin fee per break.

The Respite Association provides free self-catering breaks to Carers without the person they normally care for so that they may have a proper break from their usual caring routine. All breaks are for 7 nights (Saturday to Saturday). Parents pay a refundable £50 security deposit.

Sebastian’s Action Trust runs The Bluebells. The Bluebells is the UK’s only purpose built facility, offering accessible breaks exclusively to the families of seriously-ill children. They have two large apartments which can comfortably accommodate a maximum of 8 people and has a wide range of on-site facilities. There is a hydrotherapy pool, music room, sensory room, arts and crafts space, a cinema room, and extensive grounds which include an accessible play area. They are situated in the Basingstoke area.

KIDS have a holiday home to give children, young people, and their families a well-deserved break, all together. Nestled just outside the charming village of Broadway in the Cotswolds. The two-bedroom caravan is a modern, fully accessible gem that’s both spacious and cosy. It sleeps up to six people comfortably.

The Family Holiday Charity offer a wide range of holidays, including self-catered caravans, lodges, and cottages across the UK.  Usually, our funded holidays cover the cost of self-catered accommodation for up to 4 nights, with a contribution towards travel and food costs while on holiday. These holidays are for families on a low income who might not otherwise be able to have a holiday.

Over the Wall offer family and residential camps in Derbyshire for children with medical needs between 8-17. They have medical staff on site at all times to ensure all medical needs are catered for. They also run residential camps for siblings of children with medical needs.

Avon Tyrell SEND weekends can meet the needs of a diverse range of young people with varying complex learning needs including Social, Emotional and Mental Health (SEMH) difficulties and challenging behaviours. There team of highly skilled instructors are fully trained and on hand to help your child throughout your stay so you can relax or join in with the activities on offer.

Sunny Days Children's Fund have two static caravans at the Haven Orchards Holiday Village in Essex. The park has many facilities for families including indoor and outdoor swimming pools, club houses, arcades and many sports activities. Families with a child with a disability can be referred by a professional to the charity to stay in one of these caravans. 

Finding the right support for a holiday as a carer can make all the difference in your well-being. Numerous organisations are dedicated to helping carers have a holiday for carers both accessible and affordable. Some are as a family and some are just for carers to enjoy.

Carers Trust local carer centres will be able to give you information and there are a select number of grants for holidays available.

The Family Fund can provide grants towards the cost of holidays for families on a low income who are caring for a child with a severe disability.

The Home Farm Trust (Hft) produces an annual Holiday Information Guide for people with learning disabilities, carers, organisations and support groups.

The Family Holiday Association provides breaks at holiday sites, or grants to help with the cost of a holiday, to low-income families in need of a holiday away from home. You need to be referred by your social worker, GP or health visitor, or by a charity or other welfare agent.

Honeypot offers countryside respite breaks for young carers.

The Kiloran Trust has a house in west London for carers to stay in with the person they care for.

Over The Wall is a charity that supports children with serious illnesses, and their siblings and parents. It runs fun activity camps in Wiltshire, Dorset, Staffordshire and Scotland for siblings and weekend camps for the whole family unit.

Revitalise provides respite holidays for disabled people and carers.

After Umbrage is a charity providing free, short breaks for anyone who has been caring for someone with a life limiting condition. It also offers breaks to carers within their first 12 months of bereavement.

Little Miracles provide caravan holidays for carers. The six berth caravan (two bedrooms and a pull-out sofa) is accessible with ramps, wide entranceways, an accessible toilet and shower (wet room). The caravan is fully furnished so you can relax in the knowledge that all of your family's needs will be catered for.

Carefree has hundreds of hotels nationwide which donate rooms out of their excess capacity. Through Carefree you can access a 1-2 night hotel stay with a companion, at a time and place that works for you. You just pay a £33 admin fee per break.

The Respite Association provides free self-catering breaks to Carers without the person they normally care for so that they may have a proper break from their usual caring routine. All breaks are for 7 nights (Saturday to Saturday). Parents pay a refundable £50 security deposit.

Sebastian’s Action Trust runs The Bluebells. The Bluebells is the UK’s only purpose built facility, offering accessible breaks exclusively to the families of seriously-ill children. They have two large apartments which can comfortably accommodate a maximum of 8 people and has a wide range of on-site facilities. There is a hydrotherapy pool, music room, sensory room, arts and crafts space, a cinema room, and extensive grounds which include an accessible play area. They are situated in the Basingstoke area.

KIDS have a holiday home to give children, young people, and their families a well-deserved break, all together. Nestled just outside the charming village of Broadway in the Cotswolds. The two-bedroom caravan is a modern, fully accessible gem that’s both spacious and cosy. It sleeps up to six people comfortably.

The Family Holiday Charity offer a wide range of holidays, including self-catered caravans, lodges, and cottages across the UK.  Usually, our funded holidays cover the cost of self-catered accommodation for up to 4 nights, with a contribution towards travel and food costs while on holiday. These holidays are for families on a low income who might not otherwise be able to have a holiday.

Over the Wall offer family and residential camps in Derbyshire for children with medical needs between 8-17. They have medical staff on site at all times to ensure all medical needs are catered for. They also run residential camps for siblings of children with medical needs.

Avon Tyrell SEND weekends can meet the needs of a diverse range of young people with varying complex learning needs including Social, Emotional and Mental Health (SEMH) difficulties and challenging behaviours. There team of highly skilled instructors are fully trained and on hand to help your child throughout your stay so you can relax or join in with the activities on offer.

Sunny Days Children's Fund have two static caravans at the Haven Orchards Holiday Village in Essex. The park has many facilities for families including indoor and outdoor swimming pools, club houses, arcades and many sports activities. Families with a child with a disability can be referred by a professional to the charity to stay in one of these caravans. 

Home-Start Hampshire

Their experienced staff and trained volunteers help families with children age 0-11 years deal with the challenges they face. This can include things like help with forms, signposting, emotional support, help with attending meetings or practical help at home.

They support families in Rushmoor & Hart, Weywater (Bordon, Alton Liphook & surrounding villages), Meon Valley, Gosport, Fareham, Havant and the New Forest.

Home-Start Hampshire

Their experienced staff and trained volunteers help families with children age 0-11 years deal with the challenges they face. This can include things like help with forms, signposting, emotional support, help with attending meetings or practical help at home.

They support families in Rushmoor & Hart, Weywater (Bordon, Alton Liphook & surrounding villages), Meon Valley, Gosport, Fareham, Havant and the New Forest.

In addition to the Gateway Card and Gateway Care Plus, the Nimbus Access Card (Access card)  card acts as a photo ID that can be used to easily communicate your or your child's access requirements to events and venues, so that the venues can provide accessibility to the needs of their visitors.

It also works online with other platforms like ticketing systems, to unlock the access facilities you need.

The card shows a photo ID and translates a persons disability or impairment into symbols, effectively highlighting the barriers they face and the reasonable adjustments they might need.

The Access Card app provides you with a personalised directory of venues, with first-class accessibility information to help you plan your trips.

In addition to the Gateway Card and Gateway Care Plus, the Nimbus Access Card (Access card)  card acts as a photo ID that can be used to easily communicate your or your child's access requirements to events and venues, so that the venues can provide accessibility to the needs of their visitors.

It also works online with other platforms like ticketing systems, to unlock the access facilities you need.

The card shows a photo ID and translates a persons disability or impairment into symbols, effectively highlighting the barriers they face and the reasonable adjustments they might need.

The Access Card app provides you with a personalised directory of venues, with first-class accessibility information to help you plan your trips.

Autism Hampshire

Autism Hampshire provide:

  • Free helpline & email advice (Mon–Fri, 9 am–5 pm), plus face‑to‑face appointments by referral or walk‑in in Hampshire. 
  • Services are available pre-, during-, and post-diagnosis, and staff can signpost to diagnostic or support organisations (though they do not conduct assessments). 
  • Workshops tailored for families and autistic individuals living in Hampshire. 
  • A regularly updated directory of local support groups is maintained for adults, children, families, and carers.
  • Autism Alert Programme: free wallet cards and car badges to highlight needs during interactions with police or emergency services. 
  • Hospital & Care Passport: a customizable document detailing a person’s needs, communication preferences, and support requirements for use during medical appointments or admissions. 

How to Contact

Method Details
Phone 02380 766162
Email information.advice@autismhampshire.org.uk
Office Autism Hampshire, 1646 Parkway, Whiteley, Fareham, PO15 7AH (by appointment) 

This service is completely free for people in Hampshire and funded by Southampton City Council, Hampshire CAMHS, and Hampshire County Council Adult Services. 

 

National Deaf Children's Society - Community Connector

What is a community connector?

Community connectors are parents of deaf children, working in your area to drive change, offer support and build a strong local community of deaf children and their families. 

The NDCS's incredible team of connectors all have first hand experience of raising deaf children which helps them bridge the gap between families, health professionals and education providers.

In Hampshire our community connector is Kayleigh Greenwood.

Call or send a text message: 07974 363480

Email: kayleigh.greenwood@ndcs.org.uk

Book an online meeting

Gingerbread - Charity for single parents

Expert Advice & Information

  • Provides free, tailored guidance on a wide range of issues—benefits and Universal Credit eligibility, child maintenance, housing, money management, employment, childcare, separation, bereavement, legal rights, and wellbeing—via an extensive online resource hub.
  • Offers tools such as an online benefits calculator and detailed topic guides to help parents make informed decisions. 

Community & Support Networks

  • Hosts a 24/7 online forum, enabling single parents to connect, share experiences, and support each other.
  • Facilitates local volunteer-led groups throughout England and Wales—meeting in person or online (e.g., via Zoom)—for community, friendship, and mutual support. 

 

Hampshire SENDIASS

Who They Help

Free, impartial, confidential support for:

•    Children and young people aged 0–25 in Hampshire with SEND
•    Parents and carers of young people with SEND
•    Professionals seeking information and resources 

Three Levels of Service

Information

  • Vast online resources via website and social media
  • Topic-based clinics and workshops
  • Enables self-advocacy

Advice

  • Via Helpline (0808 164 5504) and email (info@hampshiresendiass.co.uk)
  • Advice on education, health, and care; rights; exclusions; EHCP process; transport; mediations; tribunal appeals, etc.
  • Delivered by legally trained specialists
  • Unlimited usage, with swift responses 

Support

  • One-on-one appointments via phone, online, or face-to-face
  • Help with complex cases, form-filling, drafting documents, meetings, tribunals
  • Prioritised for those with literacy, communication, translation or complex advocacy needs
  • Connecting families with local and national networks 

Contact & Operating Hours

  • Hours: Mon–Thu 9 am–5 pm, Fri 9 am–4 pm
  • Phone: 0808 164 5504
  • Email: info@hampshiresendiass.co.uk

Autism Hampshire

Autism Hampshire provide:

  • Free helpline & email advice (Mon–Fri, 9 am–5 pm), plus face‑to‑face appointments by referral or walk‑in in Hampshire. 
  • Services are available pre-, during-, and post-diagnosis, and staff can signpost to diagnostic or support organisations (though they do not conduct assessments). 
  • Workshops tailored for families and autistic individuals living in Hampshire. 
  • A regularly updated directory of local support groups is maintained for adults, children, families, and carers.
  • Autism Alert Programme: free wallet cards and car badges to highlight needs during interactions with police or emergency services. 
  • Hospital & Care Passport: a customizable document detailing a person’s needs, communication preferences, and support requirements for use during medical appointments or admissions. 

How to Contact

Method Details
Phone 02380 766162
Email information.advice@autismhampshire.org.uk
Office Autism Hampshire, 1646 Parkway, Whiteley, Fareham, PO15 7AH (by appointment) 

This service is completely free for people in Hampshire and funded by Southampton City Council, Hampshire CAMHS, and Hampshire County Council Adult Services. 

 

National Deaf Children's Society - Community Connector

What is a community connector?

Community connectors are parents of deaf children, working in your area to drive change, offer support and build a strong local community of deaf children and their families. 

The NDCS's incredible team of connectors all have first hand experience of raising deaf children which helps them bridge the gap between families, health professionals and education providers.

In Hampshire our community connector is Kayleigh Greenwood.

Call or send a text message: 07974 363480

Email: kayleigh.greenwood@ndcs.org.uk

Book an online meeting

Gingerbread - Charity for single parents

Expert Advice & Information

  • Provides free, tailored guidance on a wide range of issues—benefits and Universal Credit eligibility, child maintenance, housing, money management, employment, childcare, separation, bereavement, legal rights, and wellbeing—via an extensive online resource hub.
  • Offers tools such as an online benefits calculator and detailed topic guides to help parents make informed decisions. 

Community & Support Networks

  • Hosts a 24/7 online forum, enabling single parents to connect, share experiences, and support each other.
  • Facilitates local volunteer-led groups throughout England and Wales—meeting in person or online (e.g., via Zoom)—for community, friendship, and mutual support. 

 

Hampshire SENDIASS

Who They Help

Free, impartial, confidential support for:

•    Children and young people aged 0–25 in Hampshire with SEND
•    Parents and carers of young people with SEND
•    Professionals seeking information and resources 

Three Levels of Service

Information

  • Vast online resources via website and social media
  • Topic-based clinics and workshops
  • Enables self-advocacy

Advice

  • Via Helpline (0808 164 5504) and email (info@hampshiresendiass.co.uk)
  • Advice on education, health, and care; rights; exclusions; EHCP process; transport; mediations; tribunal appeals, etc.
  • Delivered by legally trained specialists
  • Unlimited usage, with swift responses 

Support

  • One-on-one appointments via phone, online, or face-to-face
  • Help with complex cases, form-filling, drafting documents, meetings, tribunals
  • Prioritised for those with literacy, communication, translation or complex advocacy needs
  • Connecting families with local and national networks 

Contact & Operating Hours

  • Hours: Mon–Thu 9 am–5 pm, Fri 9 am–4 pm
  • Phone: 0808 164 5504
  • Email: info@hampshiresendiass.co.uk